This booklet, created with SPRATON Rare Disease Reference Centre team, aims to support parents in the care of their child with a Pierre Robin sequence (PRS). PRS is associated in particular with retrognathism (recessed chin), glossoptosis (tongue tilted backwards) and often a posterior cleft palate, leading to breathing difficulties as well as problems with sucking and swallowing. This booklet provides parents with information and advice at every stage of their child’s treatment.

Role: Illustration and layout

Commissioned by: Centre de Référence Maladies Rares Syndromes de Pierre Robin et Troubles de Succion-Déglutition Congénitaux (SPRATON)